A few minutes ago I realized that I’ve been wearing my bifocals almost all day. That is not good. They are essentially music glasses – for reading music as I sit at the keyboard. They are not for sitting on the sofa reading or sitting at my desk spending way too much time on Facebook and thinking about the things that simply pile up in my brain that I must Google or otherwise research. You know, important matters. Which of the Oscar-nominated films have I not seen (most of them)? What chaos has Elon Shgwu caused today? Do the cats need their vaccines updated?
A couple of months ago – before I got sidetracked and forgot I was going to write here EVERY day – I mentioned that I had been diagnosed with a neurological disorder, that is, ANOTHER neurological disorder. Two is better than one, don’t you think? My neurologists have been, since about 1980, trying to figure out what causes my continuing experiences of depersonalization and derealization. For many years it was Temporal Lobe Epilepsy. Then they ruled that out. I’ve been having CT scans and MRIs year after year for half of my life. My kind doctors assure me they believe me when I tell them how I experience the world, but there is apparently no cause of it.
Or there is.
Neurology is a giant fascinating world of knowns, unknowns, perhapses, guesses, science, and – well, you know – befuddlement. It has been interesting to work with doctors from Harvard Medical School and UTSouthwestern Medical School in Dallas. I take meds I’ve taken for decades to keep me more or less on an even keel. I try to keep this old body in shape – well, at least functioning.
So now there’s a new (we’ve known about it for about eight months) diagnosis. That fairly common one – Alzheimer’s Disease. Don’t worry. I’m in the best care possible. I have infusions every two weeks of the drug approved last year by the FDA, MRIs, conversations with medical school professors, and the concern of my friends and family. You realize, of course, that it’s been only in the last five years or so that AD could be diagnosed before an autopsy. Well, I’m not dead yet.
So I’m living in Never-Never-Land and wondering what’s up. Do I have six months or six years? There’s no way to know.
And then there’s this bizarre – perhaps frightening – world now being run by Elon Shgwu and offering no sense of security or stability. Immigrant Shgwu is determined to reshape this country in his own image. And I have to worry about taking part in the defense of life as we’ve all always known it – both the good and the bad, and or simply keeping focused on the weirdness enveloping my brain. I don’t know.
Sorry, there’s no conclusion to this bit of thinking out loud. You’re welcome to follow along and see whether my brain or Mr. Shgwu wins out. Time will tell?
*The dictionary definition of “musk”:
NOUN: The scent of Human Genitals When Unwashed