Reading this post has helped me resolve to keep trying, too find someone at the school who can help me navigate the system and get the help I need, because there must be someone who understands that refusing to teach me because of my disability is wrong.

My novel, Lovers Lame, has a protagonist with cp. Go to https://www.booklocker.com. Robert Rudney

Sent from my iPhone

>

Your website provided us with useful info to work on. You’ve performed a formidable process and our entire neighborhood will probably be thankful to you.

Its very well written; I love what youve got to say.
But maybe you could a little more in the way of content so people could connect with it better.
Youve got an awful lot of text for only having one or two images.
Maybe you could space it out better?

Omg after all these years I just came across this post. I hope that snowdrop is very successful. I truly hope that you have reached the USA. I too have a child who had brain injuries after he was born prematurely. He is 25 years old now. As a very young mother at the time, him being my first child and doing it a lone I never thought that I was smart enough to help my son. All I had was three things about me that help me. One, my profound love for him, two, my faith in God and three, my determination to never give up on him. I didn’t have the time, support or money to do what you did but I read many books about the brain. One thing I understood without a doubt was that the brain is an amazing organ. I grab on to the fact that the brain whiled some parts can be damaged other parts can learn some of those sensory skilks that you might have lost. At least that was my conclusion. I grabbed on to the fact that a new brain injured is far better than an old brain injured. You see at time this is all I had my love, faith, determination and my conclusions about the brain. My son was born 28 weeks premature, and my labor day was a complete nightmare. Even after 25 years I cry about it and hope noone ever has to experience it like me or have their child experience it like my son. Well after a two days of negligence, and 3 months in NICU my son was released from the hospital diagnosed as basically a vegetable. You see in those first days of his life many things did not happen which cause him to have two severe bleeds in his brain. The bleeds and oxygen caused vision problems, severe cerebal palsy, hydrocephalus, lungs clasping etc. Again in a nutshell I was told he would not have a productive life. But like you I took what I knew and worked with my son. I took him to many doctors and challenged things that I felt would not work for him. I was fully ready for him after 4 months in the hospital. I had PT, OT theraphy scheduled for my home the day after he arrived home. I read about things to increase his vision, I would not use baby language, I would speak to him face to face. I did so many things that doctors felt sorry for me because they thought I was to determined. Well, he is 25 and not a vegetable. He is a very, very active 25 year old. He sees( not 100% from one eye) butvnot considered legally blind, he has two Vp shunts, he has cerebal palsy(at one point able to use a walker but as he got older he uses a wheelchair more) he speaks, reads, very social and plays all the sports in his one hand drive sports wheelchair. Your story is relevant today has it was written in 2008. Not sure if you will see my post but I am so happy I came across yours 6 years later. I hope your organization is a success. Maybe I can introduce you to an incredible doctor that belives in helping individuals with disabilities and always looking for new ways.

Grieving disability is a social construct Gina. And Ableism is the thing that we should be feeling guilty about in the same way as sexism or racism. No one need give me a little smile as they pass me in the street or feel guilty because they think that my life is terrible or worse than theirs.

I am fine with my disability no one need feel guilty that I am disabled and they are not. People should feel guilty if they treat me differently or avoid me or feel sorry for me or shut me out their lives and their community by lack of access and their crappy attitudes.