Patient Associations
Impact the development of new therapies
IQVIA is helping the world’s leading patient advocacy associations in their efforts to accelerate the development of new treatments and elevate the quality of patient care.
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Patient Associations - IQVIA
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As a global community, IQVIA continuously invests and commits to advancing human health.
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Explore IQVIA by region
As a global community, IQVIA continuously invests and commits to advancing human health.
Americas
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Regional Thought Leadership
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Discover IQVIA’s Registry Solutions
Access IQVIA's industry-leading technology and full range of services, from strategic consulting and program design, to technology support and quality assurance. Our registry solutions can be designed to meet the needs of your members, and support both practice improvement and the promotion of research:
- Multi-tenant architecture, data modeling, and robust data warehousing, allows you to operate multiple registries and sub-studies on a single platform
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Proud to be a partner
IQVIA's experts have extensive experience designing and deploying registries for some of the most prominent patient associations and medical specialty societies.
- The Cystic Fibrosis Foundation’s CF Patient Registry, hosted on an IQVIA technology platform, helps caregivers and researchers identify new health trends, spot effective treatments, and design clinical trials.
- American Heart Association/American Stroke Association’s Get with the Guidelines® program is hosted on technology provided by IQVIA, and impacts more than 80,000 patients annually.
- The American College of Surgeons (ACS) uses IQVIA’s Registry Platform to deploy multiple patient registries with robust metrics that improve the quality of surgical care.
- Agency for Healthcare Research and Quality (AHRQ) and IQVIA partnered to build a landmark guidebook on patient registries, with specialized guidance for rare disease registries.
2025 Indicators of Progress for the Life Sciences Sector
Patient Organization Research Collaborations: Interactions with Life Sciences Companies
INSTITUTE REPORT
Drug Shortages in the U.S. 2023
A closer look at volume and price dynamics
INSTITUTE REPORT
Supporting patients through research collaboration
Interactions between patient organizations and life sciences companies.
INSTITUTE REPORT
The Use of Medicines in the U.S. 2023
Evidence-based research and dissemination of findings remain a key foundation to advance our collective understanding and interpretation of events, and to take actions that will shape the future for all stakeholders. This annual trend report is intended to contribute to that understanding.
Institute Report
Optimizing Insulin Use Through Smart Pens: Challenges and Opportunities in Europe
This report reviews the unmet needs of people with diabetes and takes a look at how smart insulin pens can address some of the difficulties of self-management and improve outcomes.
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If you’re looking to improve disease outcomes, advance patient care, and drive engagement in your community, contact us.
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WHITE PAPER
Elevating the Authentic Voice of Patient Advocacy
Accelerating advocacy-led research and data initiatives
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Reimagining Research Engagement Through a Human Lens
To accelerate and expand the impact of effective treatments, industry leaders must place emphasis on patients' needs. The key to driving change is the advancements in patient-centered registry technology that captures longitudinal information.
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Planning to Engage: A Holistic Approach to Patient Inclusion
IQVIA's Patient Engagement framework supports comprehensive and consistent assessment and planning for the inclusion of patient needs and preferences
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Medical specialty societies have a key role to play in driving clinical data content standardization, especially for reducing reporting burden
MSSs are often the best candidates to lead specialty-centric data standardization efforts because of their access to deep clinical expertise, physician-centricity, and strong convening power.
WHITE PAPER
Registries for Rare Diseases
This white paper examines how registries can provide a valuable foundation for multi-arm, multi-company trials by fostering long-term, collaborative relationships between rare disease stakeholders and improving our understanding of diseases and treatment outcomes.
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