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Embrace digital innovation in healthcare and transform your organization with a suite of cutting-edge registry solutions.
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Maximize your patient impact with expert guidance, data-driven insights, and a suite of cutting-edge patient data solutions.
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REGISTER NOWTransform patient outcomes with expert guidance, data-driven insights, and a suite of patient data solutions.
A rare disease patient organization sought to redevelop their patient data platform to better understand the natural history of the condition, improve clinical care, understand patient experiences, and advance research. The disease affects patients worldwide, necessitating a robust and intuitive system.
The organization needed a platform that could cater to both clinical and patient-reported data collection across multiple countries. The platform had to be easy to use for patients and caregivers, while also providing accurate and research-ready data for clinicians and researchers.
IQVIA’s Clinical Insight platform combines clinically reported data from treating clinics and patient-reported data from patients or their caregivers. User-friendly features include help text, step-through forms, progression indicators, dashboards for data visualization, curator functionality to support proper categorization of patient submitted data, and an audit log for tracking changes. The platform also enables data export in various formats for research purposes.
The new platform improved the organizations’ patient engagement by allowing patients or their caregivers to easily enter data into their records. In addition, clinicians could capture rich clinical data across multiple events to provide accurate information through registry manager inquiries. Given proper consent, this data harmonization enables a more comprehensive understanding of both data sets for patients.
To learn more about IQVIA’s suite of registry solutions, contact us at ppa-contact@iqvia.com.
The organization faced the challenge of managing a large cohort and volume of data, necessitating functionality to oversee data quality and completeness. They needed a platform that could flexibly meet their strategic goals, expand data collection, and improve quality over time.
The new platform successfully migrated all historical data without loss, significantly expanded reach across countries, collected validated data from tens of thousands of patients, supported numerous research articles, and advanced rare disease research.
To learn more about IQVIA’s suite of registry solutions, contact us at ppa-contact@iqvia.com.
Harness 60 years of expertise in healthcare data, analytics, and technology to illustrate the complete patient journey and propel your mission forward.
Develop patient-centric studies to accelerate new treatments that address unmet needs, stimulate research, and improve health outcomes.
Whatever your healthcare mission, you need credible, trusted real-world evidence that supports data-driven decision making. IQVIA provides world-class data technology and services that empower research, improve outcomes, demonstrate effectiveness, and advance the state of care.
We are your optimal strategic and operational partner to achieve ambitious research and patient goals. As a leading global provider of advanced analytics, technology and data solutions, patient support services, and clinical research services, we have extensive experience as a trusted partner. We provide an unmatched breadth of expertise and capabilities to support long-term mission and strategy alignment to create effectiveness for your team as you work to achieve your organizational health data and treatment outcome goals.
At IQVIA, we are passionate about helping customers and partners improve results and patient outcomes.
IQVIA collaborates with patient organizations to engage in clinical and non-clinical studies, ensuring a strong patient voice in every area of research. Our team delivers modern solutions for patient-focused trials that accelerate enrollment by partnering with patient organizations for trial awareness and education.
Enable data-centric research projects utilizing patient organizations’ data along with claims, EHR, longitudinal prescription, hospital, genomic, oncology, and biomedical global data. Through these initiatives, patient organizations strive to improve patient identification, support the diagnostic journey, estimate prevalence, reduce the cost of disease and burden of illness, identify and engage healthcare providers, and drive RWE data partnerships.
Helping patient organizations develop strong, adaptable investigator and site strategies to create opportunities for collaborations with life sciences companies, supporting the development of treatments and products for their patient communities and generate funding to support other mission-critical activities.
With unrivaled global clinical trial experience, IQVIA enhances participant experience, delivers better data quality and insights, and improves clinical trial outcomes. Our clinical trial operations team helps to speed site selection and deploy effective patient recruitment strategies, ensuring clinical trial design considers endpoints that demonstrate value to regulators, payers, prescribers, and, most importantly, the patient.
Life science companies can be key strategic allies for patient organizations. IQVIA can help you navigate opportunities and partnerships for mutual success around aligned patient goals.
Advancing health is about navigating complexity to achieve extraordinary results. Our success stems from decades of clinical research and data expertise. Regardless of where you are in your organization's evolution, we can help you design, deliver, and drive sustainable research, data, and patient initiatives that support and accelerate your mission.
Whether your focus is on driving awareness and therapeutic prioritization for a disease or condition, unearthing deeper understanding of a disease to spark innovation, or empowering improved patient outcomes and discoveries, we can help. IQVIA provides the right connections, intelligence, infrastructure, and resources to advance the state of patient care in your community. We enable innovative organizations to deliver what matters most to patients through initiatives such as patient-focused drug development, patient support services, trial awareness and education, research and patient data initiatives and technologies, and nonprofit-sponsored clinical research and trials.
We can guide your team to develop a data-centric strategy that unlocks value for patients and your organization, enable critical research and meaningful data-driven decisions, and identify constituents and industry partners.
Whether you have an existing registry or want to develop one, we can deliver a data infrastructure that incorporates multiple data types including EHR, claims, genomic, and patient-generated data to better support patient care and research.
IQVIA makes it easier to unlock actionable insights from existing data to understand and improve patient outcomes by delivering a combination of unparalleled clinically-rich data, advanced analytics and human knowledge throughout the clinical development pathway.
As a global life sciences leader, we will foster collaboration between your organization and the healthcare industry encompassing clinical trials design and recruitment.
Our team has benefited not just from IQVIA’s expertise in sourcing and integrating data, but also from their ability to present technical ideas and options in a straightforward manner. IQVIA delivered actionable insights to help us make decisions on future investments.
Todd Durham, Ph.D.
V.P., Clinical Outcomes Research
Foundation Fighting Blindness
Patient advocacy leaders share their experiences and learning related to related to operational challenges such as addressing those affecting patient data initiatives and how they are evolving over time as patients gain increasing control of their own health data.
Balancing the competing priorities of investing in research, services, fundraising, and running an effective organization has long been a challenge for patient organizations. Patient advocacy leaders discuss how they and their peers are finding the balance and investing where they can have maximum impact for patient communities.
A diverse group of patient organization leaders address challenges in engaging patients and caregivers, including ways to listen to and incorporate views and shared experiences from their communities, best practices for building an ideal relationship between the patient, caregiver, and the advocacy organization, and strategies for using health information technology.
From the 2022 IQVIA Institute Patient Advocacy Summit, this paper provides highlights of the major themes and key takeaways discussed by the panelists, who represented patient organizations, foundations, life sciences, and technology companies.
The first step is the hardest part, and we make that easy. We will have a confidential conversation with you to explore options and determine the scope and cost of your project. With this simple engagement, you will have a true understanding of what you have, what you need, how long it will take, and what it might cost. Contact us today to get started.
A direct-to-patient data collection and engagement platform for real world research.
Richer real world data insights can drive smarter decisions.
Learn how unparalleled data, domain expertise, and technologies enable AI-powered solutions that are purpose-built for healthcare.
Explore our end-to-end, full service clinical development capabilities including Therapeutics expertise, Development Planning, Phase I early clinical development, Phase IIb/III and Phase IV Trials, Regulatory Submission and Post-Launch Studies.
Access new resources for advanced therapy development, from candidate identification through market authorization.
Build on our experience of more than 245 rare disease studies in 96 countries to fulfill your promise of hope to millions around the world.
Access broad and deep neurology expertise to reduce costs, accelerate timelines and manage risk, from clinical trials to evidence generation and beyond.
The right pediatric program to deliver your medicine sooner.
